EBN- International star Celine Dion, who suffers from Stiff Person Syndrome, did not prevent her illness from being in front of the photographers’ lenses with her son Rene-Charles Angelil – whom she shares, as well as twins Nelson and Eddie, with her late husband Rene Angelil, who died in 2016 due to throat cancer. And sharing a beautiful moment to premiere her new documentary.
Celine Dion , 56, graced the red carpet in New York City for the premiere of her documentary I Am: Celine Dion, directed by Erin Taylor, which reflects her life as a legendary singer and her battle with a rare neurological disorder, Stiff Person Syndrome (SPS) .
Dion, known as the “Queen of Narrative Power,” chose to attend the event an all-white look consisting of a long skirt and an elegant long-sleeved blouse, while Rene Charles, 23 years old, chose a black suit and matching shoes.
I Am: Celine Dion movie.. a love letter
Celine Dion described her documentary I Am: Celine Dion in a press release as a “love letter to her fans,” with the official trailer, released in May 2024, showing excerpts from Dion’s career as well as some interviews. “My voice is my life guide,” she says, adding that she has recently faced a struggle to do what she loves most because of her condition, which causes muscle spasms.
“I miss it so much. The people, I miss them. If I can’t run, I’ll walk. If I can’t walk, I’ll crawl,” Dionne adds in the trailer.
The Canadian star surprised the audience at the 2024 Grammy Awards by appearing on stage at the end of the ceremony to present the final award, the Album of the Year award. This presence of the five-time Grammy Award-winning star came after she moved away from the spotlight in December 2022 due to her suffering from stiff person syndrome – a neurological disorder that gradually affects the brain and spinal cord.
Immediately upon her arrival on stage, Dion received a warm applause from the audience at the concert, and her appearance was accompanied by the playing of the song “The Power of Love.
